Extracted postings are available in other autism files. The naming convention is: AUTISM94 (1994 autism postings from the Celiac List) AUTISM95 (1995 autism postings from the Celiac List) AUTCEL94 (1994 gluten postings from the Autism List) This file. AUTCEL95 (1995 gluten postings from the Autism List) Creation of these files is on hold due to lack of manpower. Feedback to the Listowners.======================================================================== Date: Tue, 8 Nov 1994 12:14:45 -0500 From: Trogrann@AOL.COM Subject: This I Believe .....(snip) So, just for the record, here's what I think about the major treatments being discussed on the list and why: 1) TEACCH: (snip) 2) LOVAAS (snip) 3) AIT (snip) 4) FC (snip) 5) VITAMINS (snip) 6) GLUTEN/CASEIN DIETS We tried this, and were True Believers for a year. Then we took our son *off* the diet, experimentally, and found that the "gains" we had previously seen were not lost, but continued without interruption. So we junked the diet. Did the *temporary* use of the diet help him? Did he just happen to make a developmental leap at the same time we started the diet? (A good question to consider in evaluating the results of *any* home experiment.) I *know* it *couldn't* have been the placebo effect, becaue *I* am *way* too *smart* to fall for *that*! Right? :) One final word on placebo effect: I looked at Rimland's own poll results, published in ARRI, in which he asked parents to report on dozens of different therapies/medications, and judge whether they helped, hurt, or did nothing. Looking over his results, eliminating anything that got less than a 50% positive response (which I would chalk up to placebo effect), I find only *3* choices that score high enough among parents that I would consider it statistically significant. These are: 1) Nystatin (a medication used to treat yeast infections. This result is only relevant if the autistic symptoms are connected in some way to a yeast infection.) 2) Behavior Modification. Behavior modifaction works, undoubtedly.(snip) 3) Sensory Integration Therapy. I have used SI with my kids and find it to be useful.(snip) Well, the above is my nutshell summary of 4 1/2 years in this parenting-a-child-with-autism business. We are all simply looking for a path through the woods. Mark Painter ======================================================================== Date: Sat, 10 Dec 1994 16:54:27 -0800 From: portia@CYBERVERSE.COM Subject: Re: OT and Diet from UK There is a group in the UK called Allergy Induced Autism, a bit of a misnomer as it addresses a much more serious and pervasive set of metabolic problems than simple allergies. Research in the UK and Norway has shown certain metabolic abnormaities in a large percentage of autistc children tested which may underlie the autistic condition in a (possibly large) subset of these children. A branch of the AIA UK has been started here in the US. e-mail United Kingdom AIA: autism_aia@piers.demon.CO.UK (contact Brenda O'Reilly) e-mail USA AIA: DEVINSEREN@AOL.COM (contact Deb Tritschler) Research done in the UK by Paul Shattock and in Norway by KL Reichelt and AM Knivsberg suggest following a casein and gluten free diet. This is also part of the approach of the AIA group. Some parents on this autism listserv have been using one or both of these diets on their autistic children. We have had excellent results following the casein and gluten free diet with our 2 1/2 year old son. -Portia ======================================================================== Date: Wed, 28 Dec 1994 15:04:11 -0800 From: portia@CYBERVERSE.COM Subject: Dietary Intervention in Autism (presentation LA area) Mr. Shattock, (Senior Lecturer in Pharmacy, Autism Research Unit, School of Health Sciences, University of Sunderland; Sunderland, England),has been invited to the US to speak at an international Autism conference in Dallas. He has been invited to Los Angeles to address parents and professionals by several families whose autistic children have benefited from gluten and casein-free diets. Those wishing to read in preparation for the meeting could see the following articles by Mr. Shattock: Role of Neuropeptides in Autism, Brain Dysfunction 1990; 3:328-345 and Proteins, Peptides and Autism, Brain Dysfunction 1991; 4:320-334. Space is limited, RSVP is required. Call Max at (213) 549-0500 to reserve.
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