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First and foremost: You cannot get a diagnosis of celiac disease if you have been on a gluten-free diet for a while. How long? It varies from person to person and depends just how much damage there is in the villi of the small intestine. For some people, even a few weeks on a gluten-free diet might be long enough to "mess up" the tests. To diagnose celiac disease you have to do a biopsy and find damaged villi; if your villi have already healed due to a gluten-free diet then no damage will be found. Download
This presentation gave an overview of the FDA's responsibility and its role in controlling labels and ingredients as revised by the recent revision to the labeling laws. Some information was provided on these changes and their effects as applicable to celiacs.
At the symposium, abstracts of all the various studies and reports were handed out in a thick publication entitled simply, "Free Paper Abstracts". This document was edited by Drs. Pekka Collin and Markku Maki, internationally well-known celiac experts. Each of these half-page abstracts describe briefly the study's background, objective, results, and conclusions. Bill Elkus (one of the CELIAC Listserve administrators) gave me a copy of these abstracts, and I've been plowing through them every since.
This article is my attempt to summarize and in some cases interpret some of the more important information (as I judged it) covered in these abstracts. The reader should be aware that I do not have a medical background, so my attempts to summarize may result in oversimplification. Also, my interpretations could be just plain wrong (and I'll try to make it clear when I'm interpreting instead of just summarizing). Rest assured that this article was reviewed by our advisors (Dr. Alexander and Dorothy Vaughan), just as our newsletters are. In addition, Dr. Murray also reviewed this article.
The breakout for the individual files in the series is:
GROUPSAU, Australia
GROUPSCA, Canada
GROUPSFI, Finland
GROUPSIT, Italy
GROUPSUS, United States
GROUPSIN, International, less the above countries
The US groups are additionally broken down by state listings in the form GRPUS-SS, with "SS" being the standard postal 2-letter state abbreviation. To obtain all of the US groups, you can request them as a package:
To request a copy of all US groups to your ID, E-mail the request to St Johns LISTSERV(R).
Several celiacs have been kind enough to prepare reference files of local towns:
Dr. Latov is conducting research work on celiac disease in his laboratory in collaboration with Dr. Green and Research Fellow, Armin Alaedini. They are hoping to make significant advances in the study of neurological manifestations of celiac disease.
On March 10th, more than 20 members of the celiac community and CD specialists attended a meeting of the Digestive Diseases Intragency Coordinating Committee, a part of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
The meeting, held to update the current status of Celiac Disease, was chaired by Jay Hoofnagle, M.D., Director of the Division of Digestive Diseases and Nutrition at the NIDDK. At the meeting, presentations were made by Martin Kagnoff, M.D., Joseph Murray, M.D., Alessio Fasano, M.D., and Frank Hamilton, M.D.
This memo explains how you can help.
1994 1994,
1995 part 1,
part 2,
part 3,
part 4
1996 part 1,
part 2,
part 3,
part 4
1997 part 1,
part 2,
part 3,
part 4
1998 part 1,
part 2,
part 3,
part 4
1999 part 1,
part 2,
part 3,
part 4
2000 part 1,
part 2,
part 3,
part 4
2001 part 1,
part 2,
part 3,
part 4
To support this statement, Dr. Vijay Kumar presented background information on serology at the Mt. Sinai Medical Centre, on 9 Nov. 1996: "Predictive Value of Serology Testing in Celiac Disease".
It is also possible for current subscribers to make subscription changes through a a simple form
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Where XXYY is replaced with the appropiate year and month from the above table.
It explains that we can't eat wheat, etc, and specifically mentions soy sauce, wheat noodles, MSG, and fried foods. It also says (I think) that I have GF soy sauce with me that they can use to cook my food with. She's not so good at translating, so I can't say exactly what it says, but she understands my condition very well, since we lived and cooked together for 3 years.
She must have put something scary in there, because whenever people read it, they tended to be quite conservative in what people tried to feed me. 8 days later, and no reaction, I trust it. I think it saved my life - or at least my sanity. I had my coworkers read it, and they picked places to eat that would work and during my weekend on my own, I was able to walk into a restaurant, hand over the card, and eat what they put in front of me. Looking back, it may be a blessing that I didn't have to know what I was eating half the time
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