A celiac's lifestyle is considerably easier with the help of a local support group. To assist in the process of finding local support, we have provided a series of files listing all of the celiac support groups that we are aware of. For each group one or more addresses and/or phone numbers are listed. When possible, e-mail addresses are also listed.
A very lax definition of support groups is used in these listings; any group that meets regularly for mutual support in handling celiac disease and the gluten-free diet is included in these listings. When a formal group is not available but someone is willing to function as a focal point, he/she is included as a "Resource Unit".
Updates or corrections can be sent to one of the following:
Contacts:
group
1900 La Plata
Buenos Aires
Tel. 54-21-31320
Updated: 1 Jan 1995
Contacts:
Mrs Alicia Greco
Casilla de Correo 5555
Correo Central
1000 Buenos Aires
Telex 17354 Inserar
Updated: 8 Nov 1995
Contacts:
Manfred Spichtinger
Anton-Baumgartner-Strasse
44/C5/2302
A-1230 Vienna
Hertha Deutsch
Anton-Baumgartner-Strasse
44/C5/2302
A-1232 Wein
Tel. +43-1-667-1887
Internet:
Manfred Spichtinger, spichtinger@kabelnet.at
www, http://members.kabsi.at/zoeliakie/
Updated: 1 Feb 1998
Contacts:
F Vander Linden
A 20 ave L. bertrand 100
B-1030 Brussels
Tel. +32-2-216-8347
Updated: 8 Nov 1995
Contacts:
Patrick Vandenhaute
Den Bremt 36
3020 Herent
Tel. 0032-016-23.89.64
Tel. 0032-1-74-28.45
Internet:
group, vlaamsecoeliakievereniging@altavista.com
www, http://vcv.coeliakie.be
Updated: 4 Sep 2001
Contacts:
Monica Jones
PO Box 1886
Hamilton HMHX
Tel. 809-295-2244
Updated: 8 Nov 1995
Contacts:
Isadors Zaidner
Pl. Slaviekov 9
Sofia 1000
Updated: 8 Nov 1995
Contacts:
Alojzija Mihalic
Klajiceva 16
41000 Zagreb
Tel. +38-41/451/308
Updated: 8 Nov 1995
Contacts:
group
PO Box 20
CZ - 252 63 Roztoky
Czech Republic
Internet:
group, info@celiac.cz
www, http://www.celiac.cz
Updated: 19 Oct 1999
Contacts:
Hana Maslowska
U Slovanky 7
CZ - 182 00 Praha 8
Czechia
Tel. +420-2-859-0654 (evenings and weekend)
Internet:
Hana Maslowskaf, maslow@math.cas.cz
Updated: 15 Jun 1998
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Denmark
Group: Dansk Coliaki Forening
City: Olstykke
Contacts:
Christina Folkenaes
Wilkensvej 16 A, 4 Th.
DK-2000 Frederiksberg
Tel. +45-7010-1003
Fax +45-7010-1003
Updated: 9 Mar 1998
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Estonia
Group: International Medicine Clinic
City: Tartu
Contacts:
Vello Salupere
Tartu University
Ulikooli 18
Tartu EE 2400
Tel. +372-1434-28-497
Updated: 8 Nov 1995
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Faroe Islands
Group: Coliaki Felag Foroya
City: Nordragote
Contacts:
Mrs. Marita Olsen
FR-510 Nordragote
Faroe Islands
Tel. +298-4-16-71
Updated: 8 Nov 1995
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Finland
Support groups for Finland are listed in a separate file.
Go to Finland support groups page |
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France
Group: Assoc Francaise des Intolerants au Gluten
City: Paris
Contacts:
Josephine Coppola
2, street of Vouillé
75015 PARIS
Tel.: 01.56.08.08.22
fax: 01.56.08.08.42
Internet:
www, www.afdiag.org
Updated: 13 March 2004
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Germany
Group: Deutsche Zoliakie-Gesellshaft
City: Stuttgart
Contacts:
Sofia Beisel
Filderhauptstrasse 61
D-70599 Stuttgart
Tel. +49-711-45-4514
Fax +49-711-45-67817
Ingo Paus
Tel. +49-621-84-93950
Internet:
www, http://home.t-online.de/home/dzg.e.v./
Ingo Paus, Ingo.Paus@T-Mobil.de
Updated: 17 Oct 1998
Resource Unit
City: Mannheim
Contacts:
Ulrike Oelhoff
Universitaetsbibliothek, EDV-Abteilung
D-68131
Mannheim
Tel. +49-62-292-1232
Internet:
Ulrike Oelhoff, oelhoff@RUMMELPLATZ.UNI-MANNHEIM.DE
Updated: 26 Mar 1997
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Greece
Group: Hellenic Coeliac Society
City: Athens
Contacts:
P. Plessas
125 Ippokratous St.
GR-Athens 114 72
Tel. +30-36-14-366-41-18-081
Updated: 8 Nov 1995
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Iceland
Group: Samtok Folks Med Glutenopol
City: Reykjavik
Contacts:
Magnus Asgeisson
Logafold 15
Reykjavik IS-112
Tel. +354-675064
Updated: 8 Nov 1995
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Ireland
Group: Coeliac Society of Ireland
City: Dublin
Contacts:
group
Carmichael House
4 North Brunswick Street
Dublin 7
Tel. +353-1-872-1471, 10am - 1 pm; Mon., Wed., Fri.
Internet:
group, coeliac@iol.ie
www, http://www.coeliac.ie/
Updated: 1 Jul 2001
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Israel
Group: The Israel Coeliac Society
City: Jerusalem
Contacts:
Adina Aharon
Rehov Rabinowitz 9
ISR-96457
Jerusalem
Tel. +972-2-412635
Updated: 8 Nov 1995
Group: The Israel Coeliac Society--Children's Group
City: Tel Aviv
Contacts:
Rakefet & Eyal Sheffer
9 Hagefen St.
Ramat Gan 52546
Tel/Fax +972-3-751 8644
Internet:
Rakefet & Eyal Sheffer, eyals@mail.shenkar.ac.il
Updated: 7 Apr 1998
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Italy
Support groups for Italy are listed in a separate file.
Go to the Italian support groups page |
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Latvia
Group: Republic Clinical Children's Hospital
City: Riga
Contacts:
Arija Marksa
Spec Dept, Vienibas gatve 45
Riga
Updated: 8 Nov 1995
Group: Republic Gastroenterogical Center
City: Riga
Contacts:
Nikolajs Skuja
Pilsonu 13
Riga
Updated: 1 Jan 1995
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Lithuania
Group: Vilnius Univ Children's Hospital
City: Vilnius
Contacts:
Vaidotas Urbonas
Center of Ped, Vytauto 15
2004 Vilnius
Tel. +370-122-73-14-02
Updated: 8 Nov 1995
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Malta
Group: Coeliac Assoc
City: St Julians
Contacts:
Mary Rose Caruana
Lumut
Upper Gardens
St Julians STJ 05
Updated: 8 Nov 1995
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Netherlands
National Organization: Nederlandse Coeliakie Vereniging (NCV)
Contacts:
national organization office
Postbus 4380
NL-3500-VE
Utrecht
Gerard Beerling
Kerkstraat 28
NL-6883-HT
Velp (Gld)
Tel. +31 (26) 3635362
Fax +31 (26) 3635362
Updated: 13 Apr 1997
Group: Noord-Brabant en Zeeland (Region 7)
Provincie: Brabant en Zeeland
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Noord (Region 1)
Provincie: Drenthe, Friesland, and Groningen
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Flevoland en Utrecht (Region 4)
Provincie: Utrecht en Flevoland
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Gelderland (Region 3)
Provincie: Gelderland
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Noord-Holland (Region 5)
Provincie: Holland
Contacts:
Rindert Benedictus
Schoutsland 27
NL-1619-DM
Andijk
Tel. +31 (228) 591792
Fax +31 (228) 592264
Internet:
Rindert Benedictus, jozbv@pi.net
Updated: 13 Apr 1997
Group: Zuid-Holland (Region 6)
Provincie: Holland
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Limburg (Region 8)
Provincie: Limburg
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
Group: Overijssel (Region 2)
Provincie: Overijssel
Contacts:
(contact the national organization office)
Updated: 13 Apr 1997
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New Zealand
Group: Coeliac Society of New Zealand Inc
City: Titahi Bay
Contacts:
group
PO Box 35 724
Browns Bay 1311
Auckland
Tel. 09 820 5157
Fax 09 820 5187
Madeleine Growcott
27 Tuna Tce
Titahi Bay
Internet:
group, Coeliac@xtra.co.nz
Updated: 8 Feb 2001
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Norway
Group: Norsk Coliakiforening
City: Oslo
Contacts:
group
Prinsens gate 6, 5. etg.
N-0152
Oslo
Tel. +47-22-42-60-01
Updated: 8 Nov 1995
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Poland
Group: TPD
City: Warszawa
Contacts:
Magdalena Loska
Ul.Jasna 24/26
PL-00-950
Warszawa
Tel. +48-22-27-78-44
Updated: 8 Nov 1995
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Portugal
Group: Associacao Portuguesa dos Doentes com Intolerancia ao Gluten
City: Lisboa
Contacts:
group
Clube dos Celiacos
Apartado 41005
1500 Lisboa CODEX
Internet:
Dr. Jorge Amil Dias, jamildias@MAIL.TELEPAC.PT
www, http://www.terravista.pt/copacabana/1217
Updated: 11 Sep 1997
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Romania
Group: Aglutena
City: Sibiu
Contacts:
Karin Kober
str Avramlanler nr 24
RO-2400 Sibiu
Updated: 8 Nov 1995
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Solvenia
Group: Slovensko Drustvo za Celiakijo
City: Maribor
Contacts:
Breda Kojc
Ljubljanska 5
62000 Maribor
Updated: 8 Nov 1995
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South Africa
Group: Gluten Intolerance/ Coeliac Support Group
City: Durban North
Contacts:
group
73, Old Mill Way
Durban North
4051
Tel. 031-5633109
Updated: 13 Jun 1999
Group: Coeliac Society of South Africa
City: Johannesburg
Contacts:
Mrs M. Kaplan
91 Third Ave
Percelia 2192
Johannesburg
Tel. +27-440-3431
Updated: 8 Nov 1995
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Group: E.Z.E Asociacion Celiaca de Euzkadi
City: Bilbao
Contacts:
Mireia Apraiz
Somera, 3-3o-Dpto 2
E-48005
Bilbao
Tel. +34-4-416-94-80
Updated: 1 Jan 1995
Group: ACECAN (Asociacion Celiaca de Cantabria)
City: Cantabria
Contacts:
Gonzalo Odriozola
Apdo. Correos 291
39080
Santander (Cantabria)
Tel. +34-42-22-24-87
Internet:
www, http://personales.mundivia.es/personales/acecan/
group, acecan@mundivia.es
Gonzalo Odriozola, odriozog@buc.unican.es
Updated: 1 Mar 1999
Group: ACCLM Asociacion de Celiacos ed Castilla-La Mancha
City: Castilla-La Mancha
Contacts:
Jose Banos
Antonio Garrido
Apartado de correos 680
02080
Albacete
Internet:
Jose Banos, acclm@info-ab.uclm.es
Updated: 26 Jan 1998
Group: A.C.E. Sede Central
City: Madrid
Contacts:
group
Apdo Correos 34096
E-28080
Madrid
Tel. +34-1-47-319-67
Updated: 8 Nov 1995
Group: A.C.M. (Assoc de Celiacos de Madrid)
City: Madrid
Contacts:
Manuela Marquez
C/Pozas, 4-Local
E-28004
Madrid
Tel. +34-1-523-04-94
Updated: 1 Jan 1995
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Sweden
Group: Svenska Celiakiforbundet
City: Solna
Contacts:
Bjorn Johansson
Box 1160
S017123
Solna
Tel. +46-8-7300501
Internet:
www, http://www.celiaki.se
www, http://www.celiaki.se/adresser.html
Updated: 10 Mar 1998
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Switzerland
Group: Schweizerische Interessengemeinschaft fuer Zoeliakie
City: Basel
Anita Dimas (secretary of the group)
Reichensteinerstrasse 15
CH-4053
Basel
Tel. +41-61-271-6217
Fax. +41-61-271-6218
Internet:
www, http://www.cities.ch/zoeliakie
Anita Dimas, dimas@rol3.com
Updated: 29 Jan 1999
Resource Unit
City: Basel
Contacts:
Christian Gassler
General Guisan-Strasse 104
CH-4054
Basel
Tel. +41-61-301 3090 (home)
Tel. +41-61-285 7053 (work)
Fax. +41-61-285 9017 (work)
Internet:
Christian Gassler, cgassler@compuserve.com
Updated: 26 Aug 1997
Group: Gruppo Celiachia della Svizzera Italiana
City: Giubiasco
Contacts:
group
Casella Postale 113
6592 S. Antonino
Giubiasco
Tel. +41-91-857-11-62
Internet:
Moreno Tamagni, mtamagni@.webshuttle.ch
Updated: 9 Feb 1998
Group: Assoc Romande de la Coeliakie
City: Lausanne
Contacts:
group
2 Avenue Agassiz
CH-1001
Lausanne
Tel. +41-21-319-7111
Fax. +41-21-319-7910
Updated: 9 Feb 1998
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United Kingdom
Group: The Coeliac Society of the United Kingdom
City: High Wycombe
Contacts:
Mrs J Austin
PO Box No 220
High Wycombe, Bucks HP11 2HY
Tel. +44-14-94-43-72-78
Internet:
group, admin@coeliac.co.uk
www, http://www.coeliac.co.uk
Updated: 8 Apr 1998
Resource Unit
Internet:
David Walland, David.Walland@bristol.ac.uk
Updated: 8 Apr 1998
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United States
Support groups for the United States are listed in a separate file.
Go to the United States support group page |
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Uruguay
Group: Assoc Celiaca del Uruguay ACELU
City: Montevideo
Contacts:
Sra. Ana. Ma Grassi de Monteverde
Charrua 2318
Montevideo
Updated: 8 Nov 1995
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Copyright
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entirety, provided that the copies are not used for commercial
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are equally bound to abide by the present conditions. Prior written
permission is required for any commercial use of this document, in whole
or in part, and for any partial reproduction of the contents of this
document exceeding 50 lines of up to 80 characters, or equivalent. The
title page, table of contents and index, if any, are not considered to
be part of the document for the purposes of this copyright notice, and
can be freely removed if present.
The purpose of this copyright is to protect your right to make free
copies of this paper for your friends and colleagues, to prevent
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ill-meaning people from altering the meaning of the document by changing
or removing a few paragraphs.
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Disclaimer
This fact sheet has been designed to be a general information resource.
However, it is not intended for use in diagnosis, treatment, or any
other medical application. Questions should be directed to your
personal physician. This information is not warranted and no liability
is assumed by the author or any group for the recommendations,
information, dietary suggestions, menus, and recipes promulgated. Based
upon accepted practices in supplying the source documents, this fact
sheet is accurate and complete. Products mentioned or omitted do not
constitute endorsement.
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