Celiac Support Groups in New York, USA

A celiac's lifestyle is considerably easier with the help of a local support group. To assist in the process of finding local support, we have provided a series of files listing all of the celiac support groups that we are aware of. For each group one or more addresses and/or phone numbers are listed. When possible, e-mail addresses are also listed.

A very lax definition of support groups is used in these listings; any group that meets regularly for mutual support in handling celiac disease and the gluten-free diet is included in these listings. When a formal group is not available but someone is willing to function as a focal point, he/she is included as a "Resource Unit".

Updates or corrections can be sent to one of the following:

    Celiac Listowners, Celiac-Request@maelstrom.stjohns.edu
    Michael Jones, mjones@digital.net

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| Feedback to the Listowners,  | Disclaimer,  |Copyright © | Updated 25 April 2007 |

New York Contacts

Group: The Celiac Disease Resource, Inc.
City: Albany

Contacts:
   Katie Marschilok
      4 Fairlawn Lane
      Troy, NY  12180
      518-271-1784 (home)
      518-447-3504 (office)
   Barbara Jordan
      518-439-8652
   Bernie Mansbach
      3 Deerfield Place
      Scotia, NY  12302
      518-393-3475
      518-393-1307 (fax)
Internet:
   Katie Marschilok, Marschilok@aol.com
   Bernie Mansbach, mansbachb@global2000.net
Updated: 27 Nov 1996

Resource Unit
City: Batavia

Contacts:
   Virginia R. Baldwin
      PO Box 158
      Pavilion, NY  14525
      716-584-3422
Updated: 10 Sep 1996

Group: Celiac Self Help Group
City: Binghamton

Contacts:
   Nancy Dorfman
      12 Laurel Ave.
      Binghamton, NY  13905
      607-722-3848
Internet:
   Nancy Dorfman, JamieTan@aol.com
Updated: 13 Nov 1995

Group: Gluten Free In WNY (GIG)
City: Buffalo

Contacts:
   Mike Lodico 
      PO Box 24 
      N.Tonawanda, NY 14120
      716-694-3287
   Joanne Hameister
      1051 Sweet Rd
      East Aurora, NY  14052
      716-655-0849
Internet:
   www.glutenfreeinwny.com
   Mike Lodico, glutenfree@adelphia.net
   Joanne Hameister, jeham@buffnet.net





Buffalo Chapter of CSA - WNY Gluten-Free Diet Support Group

City: Buffalo


Contacts:
    Cliff Hauck, Chairman
       30 Ainsley Ct.
       Williamsville, NY 14221
       (716) 636-6028
     Lisa Lundy, Co-Chair
       165 Merrymont Drive
       Cheektowaga, NY 14225
       (716) 835-6392
     Pat Demicke, Secretary
       556 Birchwood Square #8
       West Seneca, NY 14224
       (716) 675-6272
    Diane Bantle, Treasurer
       42 E. Cavalier Drive
       Cheektowaga, NY 14227
       (716) 674-7795
     Melissa Brooks, 2004 Walk chair
       596 Tannery Road
       West Falls, NY 14170
       (716) 655-3664
Internet:
   http://www.buffaloglutenfree.org/contacts.html
   Cliff Hauck, hauckc@adelphia.net
   Lisa Lundy, garlundy@adelphia.net
   Pat Demicke, mikedehank@aol.com
   Diane Bantle, deestune@localnet.com
   Diane Bantle, mlbrooks24@juno.com
Updated: 28 July 2004



Updated: 3 August 2003

Group: Cornell
City: Ithaca

Contacts:
   Gayle Kennedy
      9 Maplewood
      Ithaca, NY  14850
   Laura Johnson-Kelly
      48 Comfort Rd.
      Ithaca, NY  14850
      607-272-5902
   John G Maines, MD
      844 Cayuga Heights Rd.
      Ithaca NY  14850
      607-257 7366
Internet:
   Gayle Kennedy, gmk3@CORNELL.EDU
   Laura Johnson-Kelly, LWJ1@cornell.edu
   Angelica Hammer, arh2@cornell.edu
   John G Maines, swom81@epix.net
Updated: 19 Apr 1998

Resource Unit
City: Ithaca

Contacts:
   Mary Ochs
      18 Whig St.
      Trumansburg, NY  14886
      607-387-9221
Internet:
   Mary Ochs, mao4@cornell.edu
Updated: 11 Sep 1996

Group: Long Island Celiacs
City: Long Island

Contacts:
   JoanAnn DeFiglia
      1023 Jackson Ave.
      Franklin Square, NY  11010
      516-437-0396
   Ellen Mulligan
      193 5th St.
      Hicksville, NY  11801
      516-935-5109
Updated: 10 Mar 2001

Group: Raising Our Celiac Kids (R.O.C.K.) - Long Island Chapter
City: Long Island

Contacts:
   Cindy Sippin
      5 Blair Drive
      Coram, NY 11727-2265
      631-473-5842
Updated: 21 Dec 2003

Group: Celiac Kids Club
City: Middletown

Contacts:
   Marisa Frederick
      264 Scotchtown Road
      Goshen, NY  10924
      845-615-1227
Internet:
   www, http://www.celiackidsclub.org
   Marisa Frederick, mefred@warwick.net
Updated: 14 Jan 2002

Resource Unit
City: Monticello

Contacts:
   Phyllis Gerhard
      488 Stump Pond Road
      Livingston Manor, NY  12758
      914-439-3251
Updated: 18 May 1998

Mohawk Valley R.O.C.K. (upstate New York)
City: Rome

Contacts:
   Rebecca Madeira
      315-337-7671
Internet:
   Rebecca Madeira, celiacparents@earthlink.net 
Updated: 21 Dec 2003

Group: Greater New York City Celiac Support Group
City: New York

Contacts:
   Alice Dunnie Chenal
      60 Sutton Place South
      New York, NY  10022
      212-755-9541
   Merle Cachia
      456 Riverside Drive, #8-A
      New York, NY  10027
      212-662-2464
   Jean Landon
      90 LaSalle St., #12-A
      New York, NY  10027
      212-662-6435
Internet:
   Jean Landon, HLandon326@AOL.COM
   Leslie Elsner, LEls608@AOL.COM
   Jackie Beck, jandj313@AOL.COM
Updated: 10 Mar 2001

Group: North Country Celiac Support Group
City: Plattsburgh

Contacts:
   Permelia "Perry" Provost
	518-561-7206
Internet:
    Permelia "Perry" Provost GryProvostlionma@aol.com
Updated: 6 Jan 2004

Group: Rochester
City: Rochester

Contacts:
   Carol Becker
      714 Middlebury Road
      Webster, NY  14580
      716-671-1443
   Joel Elias
      41 Split Rock
      Pittsford, NY  14534
      716-586-4137
Internet:
   www, http://www.rochesterceliacs.org
   group, rochcel@geocities.com
   Joel Elias, joel@rochester.rr.com
   Marvin Becker, marvb1@juno.com
Updated: 10 Mar 2001

Group: Suffolk County Celiacs - a Branch of GIG
City: Suffolk County

Contacts: 
	Les Doti
	PO Box 13
	Kings Park, NY 11754-0013
	631 724-6651
	Barbara Pepitone, Lindenhurst
	631 957-2885
	Michael Thorn, Shirley
	631 395-5071
	Dianna Busch, Lindenhurst
	516 382-3346
        Barbara Bonavoglia, Bohemia   
        631 567-0740 

Internet:
Group, Suffolkcountyceliacs.org
Updated: 25 April 2007

Group: Staten Island Celiacs
City: Staten Island

Contacts:
   Lila Barbes
      85 Cloverdale Ave.
      Staten Island, NY  10308
      718-984-8547
Updated: 10 Mar 2001

Group: Central NY Celiac SG
City: Syracuse

Contacts:
   Amy Eliezer
      4 Fir Tree Ln
      Jamesville, NY  13078
      315-445-0703
Internet:
   Amy Eliezer, AEliezer@aol.com
Updated: 27 Jun 1996

Group: Celiac Support Group of the Mohawk Valley
City: Utica

Meetings:
   3rd Sat. each month, 10:00 am
      New York Mills Public Library
      401 Main St.
      New York Mills, NY  13417
Contacts:
   Eleanor P. Wallace
      10 Clinton St., Apt. 715
      Whitesboro, NY 13492  
      315-736-6981
   Sheila Tucker
      Box 1, 2921 Main St.
      McConnellsville, NY  13401 
      315-245-3276
   Chris McGrellis
      1 Palmer Ave.
      Whitesboro, NY  13492
      315-736-5018
Internet:
   WWW, http://www.geocities.com/elpa1_2000/
   Eleanor P. Wallace, elpar6@yahoo.com
   Sheila Tucker, stsiamese@aol.com
Updated: 30 Dec 2004

Group: Westchester Celiac Sprue SG
City: White Plains

Contacts:
   Sue Goldstein
      9 Salem Place
      White Plains, NY  10605
      914-428-1389
Internet:
   Sue Goldstein, suegldstn@optonline.net
   Leslie Elsner, Lesl608@AOL.COM
   Lou Zimet, LouZimet@AOL.COM
   Jackie Beck, jandj313@AOL.COM
   Jay Wiener, tri2@compuserve.com
Updated: 31 Mar 2006
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Copyright

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Disclaimer

This fact sheet has been designed to be a general information resource. However, it is not intended for use in diagnosis, treatment, or any other medical application. Questions should be directed to your personal physician. This information is not warranted and no liability is assumed by the author or any group for the recommendations, information, dietary suggestions, menus, and recipes promulgated. Based upon accepted practices in supplying the source documents, this fact sheet is accurate and complete. Products mentioned or omitted do not constitute endorsement.

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