The accuracy of the information or the views
presented at each site is beyond the scope of our control. They
do provide additional insight into the life of a celiac and is
why we offer these links.
A search using the term "celiac" with these search
engines will assist in finding related material on the Internet.
A search engine is an Internet technique for finding information
on a desired subject matter.
AltaVista,
DejaNews,
Excite,
HotBot,
Infoseek,
Lycos,
Yahoo, Yahoo
- Health: Diseases and Conditions: Celiac, WebCrawler
Support Groups (National and Local) are are available by
country as follows:
Since Internet addresses change so often, please use this search engine
to find current URLs.
A few that have made a major contribution to our lifestyle are
listed below
- Don Wiss
- Multiple sites of celiac related information.
- The
Celiac Disease Webring
- The purpose of the Webring is to provide a single
location with links to web resources for people with
Celiac Disease, Dermatitis Herpetiformis and gluten
intolerance.
- Kenneth
D. Fine, M.D.,
- Gastroenterologist, Medical Director of GI Physiology
Laboratory of Baylor University Medical Center at Dallas,
Staff Researcher, Div. of GI Research, and Medical
Advisor of Lone Star Celiac Support Group, Dallas/Ft.
Worth, TX. Their GI Physiology Lab has developed a brand
new Intestinal Research Web Site with the following
subjects: Research Update, Educational Information,
Receipt Publications, To Become A Study Participant, To
Make a Contribution, To Become A Patient in the
Microscopic Colitis Clinic, To Become A Patient In Our
Celiac Sprue Clinic.
- Mayo
Clinic Online
- An interview with Joe Murray.
- The Combined Health
Information Database
- Search for references to celiac related information.
- Prof. Markku Mäki
- Highlights the Tampere University Hospital in Finland
project that seeks to widen the definition of celiac
disease. Includes a statement that there is a condition,
called celiac trait that runs in families of celiac.
There is also a list of publications.
- Celiac
Disease and Gluten Sensitivity.
- An introductory write-up by Carol E. Semrad, M.D., of the
Gastroenterology Department at Columbia University.
- Genetics
of Celiac Disease.
- A detailed discussion of genetics and CD.
- Dermatitis
Herpetiformis.
- The National Center for Biotechnology Information (Johns
Hopkins University).
- The
Use of Gluten and Casein Free Diets with People with
Autism.
- From the Autism Research Unit at the University of
Sunderland.
- Center for Celiac Research.
- This site is maintained by the CFCR and provides information on the
Center's ongoing research as well as the Symposium 2000 that will be
hosted in August of 2000.
-
Dr Murray's 1999 article on CD, The widening spectrum of celiac disease
- Dr. Kenneth Fine
- Gastroenterological
of Autralia
- American
Gastroenterological Association
- American Society for
Gastrointestinal Endoscopy (ASGE)
- British Digestive
Foundation
- Royal Australasian
College of Physicians
- New Zealand Therapeutic Database
of GF products
-
Prospective study of body mass index in patients with coeliac disease
- was published in the BMJ. It reports that of 50 newly diagnosed celiac
patients, 11 were underweight, 22 were within the normal range, and 17 were
overweight.
- Celiac Disease in March 1999
- An interesting article by Dr. Murray for physicians
- Absence
of oats toxicity in adult coeliac disease
- This study shows the safety of adding oats to the
gluten-free diet of 10 patients with coeliac disease.
Seven of the patients have continued to take the same
quantity of oats for more than 12 months without adverse
effect. These findings are in agreement with a recently
published study.2 In that study, however, the authors
stated that they excluded coeliac patients with
"severe" disease. No such policy was adopted in
our study, and two of our patients were subsequently
shown to be exquisitely sensitive when given a gluten
micro-challenge. A third patient was also shown to be
very sensitive to trace quantities of gluten taken
inadvertently.
- A
comparison of diets with and without oats in adults with
celiac disease
- This paper says: BACKGROUND. Wheat, rye, and barley
damage the small-intestinal mucosa of patients with
celiac disease; maize and rice are harmless. The effects
of a diet containing oats are uncertain.
- A
report shows that celiac disease is far more common than
generally thought
- Coeliac disease in primary care: case finding study
Harold Hin, Graham Bird, Peter Fisher, Nick Mahy, and
Derek Jewell BMJ 1999; 318: 164-167.
- Being
overweight and having undiagnosed celiac disease
- The British Medical Journal just published a very
interesting article reporting that of 50 newly diagnosed
celiac patients, 11 were underweight, 22 were within the
normal range, and 17 were overweight. That would appear
to challenge the conventional perspective on underweight
celiacs.
- It
averages 10 years for a U.S. Celiac person to be
diagnosed.
- "In Italy, where celiac disease is common, all
children are screened by age 6 so that even asymptomatic
disease is caught early. In addition, Italians of any age
are tested for the disease as soon as they show symptoms.
As a result of this vigilance, the time between when
symptoms begin and the disease is diagnosed is usually
only 2 to 3 weeks. In the United States, the time between
the first symptoms and diagnosis averages about 10
years."
- Dr. Kenneth Fine
at Baylor on microscopic colitis and its relation to
celiac disease
- From Gastrenterology - Efficacy of Open-Label Bismuth
Subsalicylate for the Treatment of Microscopic
Colitis" (1998;114:29-36) and "The Prevalence
and Causes of Chronic Diarrhea in Patients with Celiac
Sprue Treated with a Gluten-Free Diet
- The New England Journal of Medicine
- May 2, 1996
- The
Many Faces of Celiac Disease
The
Prevalence of Occult Gastrointestinal Bleeding in Celiac
Sprue
- May 16, 1996
- Correspondence
A
79-Year-Old Woman with Anorexia, Weight Loss, and
Diarrhea after Treatment for Celiac Disease.
- November 21, 1996
- Calling
for earlier detection of celiac disease in patients,
who may present with subclinical symptoms or who fall in
high risk categories, as a way of preventing T-cell
lymphoma associated with celiac disease.
- Three Articles on the Oats Controversy
- A
Comparison of Diets with and without Oats in Adults with
Celiac Disease.
Editorial.
Correspondence.
Coping
with Celiac Disease.
from a Tufts University Health and Nutrition Letter
References on Celiac.
Do a search on celiac
-
Prevention's magazine.
- This article outlines the need for additional calcium in people with CD.
-
Serologic, Genetic Markers Identify Celiac Disease in First-Degree
Relatives of Patients.
- Both serologic markers and the human lymphocyte antigen class II
extended DQ2 (HLA-DQ2) haplotype are useful markers for screening
first-degree relatives of patients with celiac disease for the disorder.
- Christina
- A TV show underwritten by Eden Foods
- Epicurious,
the online headquarters for Bon Appétit and Gourmet magazines.
- Everything that is food-related!
Recipe File.
A Linked Lexicon.
An online food dictionary.
Return to the Table of
Contents
AOL Chat
For those that have access to America On-line, this is an
opportunity to meet other people with celiac disease and have a
casual chat about any topic. For additional details contact: Toyken
The Celiac Support Chat has been added to the schedule in
Better Health, available to AOL only. Go to Keyword: Better
Health for the schedule for the chat room.
MedSupport
http://www.medsupport.org/celianav.htm
The adult LIVE Celiac chat group welcomes all celiacs and
family or friends of celiacs to join us to ask questions, share
information or just see what is going on.
If you have any questions, please contact Marilyn
Club Celiac
http://www.geocities.com/EnchantedForest/Glade/2715
This is a site for children and young adults to trade
information, recipes and chat but all children with food
allergies are welcome.
Lucy's
http://www.geocities.com/HotSprings/2579/
Celiac Chat is a 24 Hour Chat room. It is a great place to exchange
recipes, information, and support.
If you have any questions, please contact
Lucy
The Celiac Disease On-Line Support Group
http://www.geocities.com/HotSprings/Spa/4003/delphi.html
Dedicated to providing on-line support to people with Celiac Disease.
Registration is required but the service is free. There is a message
board for posting messages on Celiac Disease and gluten intolerance. Our
purpose is to provide emotional support and practical support to those
who wish to live a gluten free life.
Contact Webmaster, Abigail
Neuman or Assistant, Linda
Holme for additional information.
Dr. Koop's Community
http://www.drkoop.com/interactive/chat.asp?room=health
This is strictly a medical website. You will be amazed at how much
information is available such as Family Health, Health Resources, Health
& Wellness, Interactive Communities, Conditions & Concerns, etc. There
are also over 100 chats at this website.
If you have any questions, please contact Maizy
This fact sheet has been designed to be a general information
resource. However, it is not intended for use in diagnosis,
treatment, or any other medical application. Questions should be
directed to your personal physician. This information is not
warranted and no liability is assumed by the author or any group
for the recommendations, information, dietary suggestions, menus,
and recipes promulgated. Based upon accepted practices in
supplying the source documents, this fact sheet is accurate and
complete. Products mentioned or omitted do not constitute
endorsement.
This site may contain links to sites on the Internet which are
owned and operated by third parties. The Celiac Listowners are
not responsible for the availability of, or the content located
on or through, any such third-party site.