THE SPRUE-NIK PRESS

        Published by the Tri-County Celiac Sprue Support Group,
        a chapter of CSA/USA, Inc. serving southeastern Michigan

Twenty-Fourth Edition                                     October 1995
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          .................................................
          : What's Inside                      Search For :
          : -------------                      ---------- :
          : Miscellaneous Notes  . . . . . . . . .  -1-   :
          : The New Shopping Guide . . . . . . . .  -2-   :
          : TCCSSG PROFILE: Ralph Strongman  . . .  -3-   :
          : Newsletter Roundup  . . .  . . . . . .  -4-   :
          : Celiac Disease and Birth Defects . . .  -5-   :
          : Recipe Page  . . . . . . . . . . . . .  -6-   :
          :...............................................:

Disclaimer
Miscellaneous Notes: -------1------------- Pasta Express is a pasta machine that Toni Richardson uses and recommends. It is now available for $130 (plus shipping) from Chef's Catalogue. This is a drop in price of $50. To order, call 1-800-338-3232 and ask for item #3654. Dorothy Vaughan, our dietitian advisor, has done some checking on two points raised at the Baltimore conference by Felicia Satchel, a Consumer Safety Officer working for the FDA: 1) Dorothy found that, as reported by Felicia Satchel, imported foods in the US must follow the same labeling laws as foods produced in the US. 2) Felicia Satchel also reported the ingredient "vinegar" must come from corn. Dorothy's investigation has determined that this is NOT TRUE; the ingredient "vinegar" can come from any source, including gluten-containing grains. There is a new e-mail list specifically for celiac children, and the parents of celiac children. If you have e-mail access to the internet, you can subscribe to this new list by sending a message to LISTSERV@MAELSTROM.STJOHNS.EDU. The message should contain this line: SUBSCRIBE CEL-KIDS (first-name)> (last-name) - - - - - Celiac Humor on the Internet: We've all seen it: The relative, friend, or waitress that simply doesn't have a clue when it comes to things that are made from wheat. Here are some of the "Duh" statements that Barbara Jean Kuehl and Sarah Rogers have heard. These come from postings on the CELIAC e-mail forum, dated Sept. 1, 1995: "This bread is ok for you. It's made with white flour, not wheat flour." "It's ok. There's no wheat in it. It comes over noodles." "It's ok. There's no wheat IN it...just some bread crumbs on the top." "It's ok. There's no wheat in the pot roast" (and then it comes smothered in gravy). "It's ok. There's maybe only 2 Tablespoons of flour in the sauce." "It's ok. It's made out of flour." "It's potato bread." "Crackers are ok, aren't they?" "I only gave her graham crackers." I have a few favorites of my own: "It's okay. These are fat-free crackers." "Your kids can't have wheat? Okay, then I'd recommend the kid's spaghetti plate." "There is no gluten. We use all natural ingredients." "You can just scrape off the crust."

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The New Shopping Guide ----------2------------ by Jim & Vicki Lyles All of our local members and US newsletter subscribers should have received a copy of our newly updated shopping guide along with this newsletter. This year's shopping guide is even larger than last year, with over 4,400 entries. We've expanded the section on ingredients, to give you whatever information we have received from the various manufacturers. We've included copies of the letters we actually used when contacting manufacturers, so that you could see for yourself the questions we asked and the type of ingredients we questioned. Often we are asked about brands that don't appear in the shopping guide. Are these brands not gluten-free? The answer is: we don't know. You'll notice that the shopping guide does contain a section that lists specific brands that are not GF, according to the manufacturers. If a brand does not appear in that list, nor in the list of products that are GF, it means either: 1) the company failed to respond to our inquiries (over half of the companies don't), 2) we didn't write to them or didn't have a good address for them, or 3) the company responded to our inquiry, but was unable (unwilling?) to give us a list of GF products. Note that the focus of the shopping guide is products which can be purchased in grocery and health food stores. We do not include products which are strictly sold via mail-order. A list of mail-order GF vendors is included in each new member/subscriber packet that we give out; you can contact these companies to get their current catalogues and price lists. Soy sauce has been a difficult product to deal with over the last few years, as formulations for popular brands (La Choy, San-J) have changed. To help clear up the confusion, let me tell you what we currently know about the various soy sauces: * La Choy regular and lite soy sauces are NOT GF. However, La Choy has a new variety called Stir Fry Mandarin Soy Sauce which is GF. * San-J Wheat-Free Organic Tamari is GF. None of the other San-J varieties are GF. * Eden Foods Domestic and Imported Wheat-Free Tamari are both GF. Eden products can be found in health food stores. * There are no other soy sauces for which we have received information. This year's shopping guide includes products from Revlon (cosmetics), Bristol-Meyer Squibb Prescription Drugs, Barbara's, RC, Durkee, Duke's, Sauer's, Fleischmann's Yeast, Godiva, Health Valley, IBC Root Beer, Spice Islands, and Watkins. However, there were also some brands we had to remove from the list, including Nabisco, Oscar Mayer, and Sandoz. If you are not a member of our group or a subscriber to our printed newsletter, you can still obtain a copy of the shopping guide. The cost is $10, postage included. Send your request to: Marcia Campbell TCCSSG 34638 Beechwood Farmington Hills, MI 48335

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TCCSSG Profile: Ralph Strongman -----------3-------------------- by Judy Hafner In our last profile, we looked at celiac disease (CD) in a pre- schooler. This time we are at the other end of the age scale, as we look at CD in one of our group's senior citizens. Ralph Strongman had symptoms of diarrhea, weight loss, and decreased energy for years. He saw several doctors who always diagnosed his problem as IBS (Irritable Bowel Syndrome). In January 1993 Ralph left for a sixty day visit with his son in Hawaii. While he was there the symptoms escalated. Ralph states, "I saw a doctor when I was in Hawaii due to my diarrhea and weakened condition. This doctor thought I had the flu or IBS and put me on the antibiotic Cipro for a week along with Metamucil for fiber. My symptoms worsened. "When I returned home, I saw my family physician and asked to be referred to a gastrointestinal doctor, Dr. Duffy. He agreed and said, 'You'll probably have a few weeks' wait getting into the doctor, why don't you try eliminating bread between now and then and see if that helps?' Although it was only a few weeks until I saw Dr. Duffy, I had already noticed a lessening of my symptoms. "Dr. Duffy took the necessary blood tests and then did an intestinal biopsy. I was diagnosed with Celiac Sprue Disease. I joined this support group right away. I feel good now." Contributing Editor's Note: Having lost approximately 30 lb. over the past few years, Ralph's weight is now back to normal and he looks much younger than his 73 years of age.

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Newsletter Roundup -------4----------- Compiled by Jim Lyles We exchange newsletters with several other celiac groups. In this article I will summarize some of what we've learned from our newsletter swapping. ........................................................ : : : Excerpts from *The Celiac ActionLine* : : ------------------------------------- : : July 1995 (Vol. V, No. 3) Mike Jones, Publisher : : 12733 Newfield Drive : : Orlando, FL 32837 : :.....................................................: Pat Garst, one of the original forces in improving the lives of US celiacs, passed away on April 16, 1995 in Frankfort, Kentucky. Pat will always be remembered for her work as one of the initial organizers of the Midwestern Celiac Sprue Association. She was a respected author and poet. Pat will be missed, but what she started will continue as a greater understanding of CD is obtained by everyone. _Against the Grain: The Slightly Eccentric Guide to Living Well Without Gluten or Wheat_, a book by Jax Peters Lowell, turns a serious diet into a witty and wise survival guide. The book contains chapters on restaurant assertiveness, allergy etiquette, traveling with a special diet and recipes from 12 chefs. One source for purchasing the book is the Gluten-Free Pantry, at a cost of $22.50. [Dorothy Vaughan, our dietitian advisor, had a copy of this book at our September meeting. She also highly recommends it--editor] Honors for a GF Pie: A Wyoming celiac won the All American City Celebration Grand Prize on September 23, 1994, for her apple pie. She used the recipe "Donna Jo's Dream Pastry" on page 146 of Bette Hagman's second cookbook, _More From the Gluten-Free Gourmet_. Disaster Preparedness: It is wise to have a stockpile of emergency GF rations on hand in the event of an emergency. Consider adding Ensure or Ensure Plus to your stockpile of emergency rations. These GF products can supplement any available GF foods to ensure a well-balanced meal. Endomysial Antibody Testing for children under two years of age may show unreliable results. This does not mean that the tests should not be used, but that there needs to be some caution in how you interpret a negative test in the younger child. If all tests are negative and there is still a strong clinical suspicion for celiac disease, a biopsy is still indicated.(1) Cow's Milk Protein Intolerance is a disease that must be ruled out for those under two years of age when CD is suspected. Uncovering CD in Diabetics: In a study of 238 children and adolescents with insulin dependent diabetes millitus (IDDM), serum IgA reticulin antibody tests were performed once a year. During the initial testing, within one year of the onset of IDDM, 5 children (2%) were positive. During follow up, 11 of the antibody-negative children (5%) became positive; of these 9 were shown to have silent CD by jejunal biopsies. This study suggests that repeated serological screening and biopsies should be considered to detect late developing, clinically silent CD among patients with IDDM.(2) Just Devine GF Cakes & Sweets is a new bakery for GF products. Their products include: peanut brittle, carrot cake, chocolate zucchini cake, pumpkin bread, cranberry bread, pineapple bread, and tarts. Write to Just Devine, 4829 Tabard Place, Annandale, VA 22003, or call (703) 425-7899. Sesmark Crackers no longer has a rice flour only environment. The potential exists, as is the case with most products, for cross- contamination from airborne wheat flour dust. The label has been changed from "Wheat Free" to "No Wheat Added". Sesmark is to be commended for its efforts to reflect the truth about ingredients in its products. The contamination risk exists but the danger is no worse that what is found in other products produced in a combined environment. Red Star Yeast has used their bread-making knowledge to produce a new bread machine with a standard mix-only cycle and a unique bake-only cycle. This combination gives celiacs the desired single rising without any "oven kick". Van's Wheat-Free and GF Toaster Waffles are now available in Cinnamon Apple as well as the original flavor. [These waffles have gotten many favorable comments during recent Internet discussions--editor] Call Van's International at (310) 320-8611 for more information. Dairy Ease is no longer listed as GF. Recent questions caused them to go back to their suppliers for reassurances, which they did not get. To be safe, they decided not to list their product as GF. They do not ADD gluten to their product. They have been very cooperative with celiacs, and are attempting to work with their chemist and outside suppliers to possibly change this situation. They can be reached at (800) 331-4536. _Preserving Today_ by Jeanne Lesem is a comprehensive cookbook of techniques and recipes used in preserving. The majority of pickle recipes are GF with no conversion required. Blue (Bleu) Cheese should be avoided, according to one of the national celiac groups, because of mold from bread. Cheeses considered to be "blue" include: Roquefort, Gorgonzola, Stilton, Danish Blue, Cabrales, and American Blue.(3) ......................................................... : : : Excerpts from the Midwest Gluten Intolerance Group : : -------------------------------------------------- : : newsletter: May 1995 4007 Forest Rd. : : newsletter: Sept. 1995 St. Louis Park, MN 55416 : :......................................................: Gluten and Autism: Recently there was an interesting case of a boy with severe autism who was put on a GF diet, after his parents received information from The Center for the Study of Autism about studies done in England and Norway suggesting the possible benefit of a GF and casein-free diet. This dietary treatment for autism in childhood is only experimental [and may only help in some cases]. However, in this case it has been helpful to the boy over the past year. More on Blue (Bleu) Cheese: The veins of blue or green in blue cheese come from a mold caused by fungi consuming organic matter. In the case of Roquefort cheese, a special type of bread crumb is added to the cheese curds during the processing. The bread crumbs are powdered to a fine dust upon which the fungi feed and create the mold. Whether or not the gliadin component of gluten remains in the cheese in this process is questionable. ...................................................... : : : Excerpts from the Westchester CS Support Group : : ---------------------------------------------- : : newsletter: Aug. 1995 Sue Goldstein : : 9 Salem Place : : White Plains, NY 10605 : :...................................................: Polio Vaccine and CD: There was a discussion on the Internet regarding the GF status of polio vaccine. Dr. Joseph Murray, a gastroenterologist at the University of Iowa, suggested that polio vaccine should be safe for children even if they have CD. Why Study CD? Dr. Stephen James, while speaking at the Baltimore conference, answers this question. Since it is clear for the most part what causes CD, and since a very good treatment exists [the GF diet], one might ask why a substantial amount of effort should be devoted to the study of this disease. The reason is that CD is the best example of a disease in which certain genetically susceptible individuals have a very specific type of inflammatory response in the intestine in response to a well-defined stimulus. If all the details of the pathogenesis of CD can be determined, it is likely that this information will be useful in understanding other diseases such as food allergy, the inflammatory bowel diseases, autoimmune diseases triggered by dietary components, and helicobacter pylori infection (the major cause of ulcers). In addition, a clear understanding of this abnormal response might make it possible to better trigger immune responses in the gastrointestinal tract when they are desirable, such as with vaccination or immunotherapy for autoimmune diseases. ......................................................... : : : Excerpts from *Celiac Connections* : : ---------------------------------- : : Sept. 1995 (Vol. 2, No. 4) Julie Lasky, Director : : 62 Parkwood Drive : : Albany, NY 12205 : :......................................................: Soy Flour: Foods made from soy beans can lower blood cholesterol and other blood fats by 10%, thus significantly reducing the risk of heart disease, according to a report published in the New England Journal of Medicine (Aug. 3, 1995). Other research shows that soy can lower the risk of cancer. Many GF recipes use soy flours and milks, such as the Rice-Soy Waffles found in _The Gluten-Free Gourmet_ by Bette Hagman. For more information about soy, contact the United Soy Bean Board at (800) TALK_SOY (weekdays 8-4) and ask for their free newsletter, *The Soy Connection*. Soy flour tips: * Always combine soy flour with other flours. For example, 1 cup of wheat flour can be replaced by 1/2 cup each soy flour and potato starch. * Soy flour browns more quickly than other flours. Reduce your baking time or lower the oven temperature by 25 degrees F. * To bring out more of soy's nutty flavor, stir the flour in an ungreased pan over medium heat for a few minutes. * Soy tastes best in nut, chocolate, or fruit-flavored baked products. .......................................... : : : Excerpts from *Sprue Review* : : ---------------------------- : : Sept. 1995 Suzyn Dobroski, Editor : : 166 Eastland Ave. : : Rochester, NY 14618 : :.......................................: Celiac Awareness Month: Did you know October is the designated month to speak out about CD? Take the opportunity to educate employers, friends, neighbors, and dietitians. Invite them to a GF meal. Ask your local library if you can utilize their display case to educate the community about the disease and the resources available locally. Encourage your siblings to have the antibody blood tests done. Also send information on the disease to anyone you may know in the health care professions. Omega Nutrition offers several unusual flours, including bean, almond, hazelnut, and pistachio. These flours offer a unique taste to a recipe when used in place of 20% of the flours called for in the recipe. A representative from the company, when asked about cross-contamination, indicated they don't process any other flours. Prices range from $4 to $5.35 per 8 oz. bag. Write to Omega Nutrition, 1720 Labountry Rd., Ferndale, WA 98248 or call (800) 661-3529.

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Celiac Disease and Birth Defects -------------5------------------- recorded from the Internet In recent discussions on the Internet, a subject came up that I had not previously heard of with respect to Celiac Disease: Birth defects. I'll repeat here for you some of the discussion which took place on the Internet. In response to a couple of messages, I sent the following message to a group of doctors with an interest in celiac disease: * * * * * From: Jim Lyles Date: September 14, 1995 2:52 pm There was a post on the CELIAC list recently which suggests a complication of CD of which I had not previously heard. I'll try to summarize that post: A young mother, who is quite thin, "...was diagnosed with sprue in high school, but she got over it." (This, of course, is nonsense.) She has a young daughter with spina bifida. The post suggested a possible link between spina bifida and low maternal folic acid. The question raised in the post is: Could the spina bifida in the daughter have been caused by malabsorption of folic acid in the mother during pregnancy, with the malabsorption being a direct result of untreated celiac disease in the mother? If that is the case, then we have a child inflicted with a life-long condition due to untreated CD during pregnancy. Meanwhile the young mother could easily have another child, and is apparently unaware that she still has (and always will have) the sprue she thought she got over in high school. I wonder how many other birth defects relating to nutritional deficiencies during pregnancy might be caused by celiac-related malabsorption. Does this connection seem plausible? Are there any studies comparing birth defects for untreated celiac mothers with birth defects in the population at large? Could such information be easily gathered? I'd welcome any comments you may have on this topic. If there is a correlation between birth defects and untreated CD, I think it would be a powerful motivator for celiac women of childbearing age to not cheat on the diet. People who won't take care of themselves will often go to extraordinary lengths to protect their current and future children. It would also demonstrate the importance of screening the US population for celiac disease, even in the absence of apparent symptoms. * * * * * There were several responses to this message. I received permission from two of the doctors to widely distribute their responses; these I will repeat here for you. The first came from Dr. Markku Maki, a Professor of Pediatrics at the University of Tampere in Finland. You may recall that he was one of the speakers at the Baltimore conference we summarized in the September Sprue-nik Press. Dr. Maki's response: * * * * * From: Markku Maki, MD Date: September 15, 1995 5:25 am Jim Lyles wrote: >The question raised in the post is: Could the spina bifida in the >daughter have been caused by malabsorption?....I'd welcome any >comments you may have on this topic. At the Celiac Disease Study Group in Tampere, we want to respond. We have discussed this lately and we are going to do an inquiry to the Finnish Coeliac Disease Society members about this. Dr. Kati Holm has a case you might be interested in: The first child of the mother suffered from spina bifida and meningomyelocele (boy). Two pregnancies that followed resulted in abortion because of intrauterine diagnosis (confirmed meningomyelocele at autopsy). During the fourth pregnancy anemia and folic acid deficiency were noticed. The mother was treated with vitamins, folic acid and iron. The pregnancy resulted in a healthy girl. After this there were again several abortions because of detected menigmyelocele. The mother contacted Dr. Kati Holm (PhD on celiac disease) because of diarrhea and anemia and subsequently celiac disease screening tests were performed among other studies. IgA class reticulin autoantibody tests were positive and a jejunal biopsy revealed the typical lesion for celiac disease. She was prescribed a gluten-free diet, after which symptoms disappeared. The iron and folic acid deficiencies disappeared at the same time as the mucosa recovered. One pregnancy resulted, without any other therapy, in a healthy child. All this by chance alone?? Prof. Markku Maki Institute of Medical Technology University of Tampere P.O. Box 607 FIN-33101 Tampere, Finland * * * * * The other response came from Dr. Karoly Horvath, Associate Professor of Pediatrics and director of the Pediatric Gastrointestinal & Nutrition Laboratory at University of Maryland: * * * * * From: Karoly Horvath, MD, PhD Date: September 17, 1995 5:47 pm The relation between folate deficiency and neural tube defects is well documented. Several studies have demonstrated a significant reduction of neural tube defects in the newborns of folate supplemented pregnant woman. The risk reduction varies between 58-91%. The different studies used different supplementation and doses. A recent review article summarizes the up-to-date information in this subject (Czeizel AE, "Folic acid in the prevention of neural tube defects", Journal of Pediatric Gastroenterology and Nutrition 20: 4-16, 1995). The other association between folate deficiency and absorptive problem is not questionable, and does not need to be proven. I do not have any doubt that that the babies of women with non-diagnosed CD have an increased risk for neural tube defects. We can collect information retrospectively, however, it will not be easy and convincing. A prospective study is easier if we found a center treating mostly children with neural tube defects and we can get blood samples from the mother shortly after giving birth for folate level determination and celiac serologic tests. Karoly Horvath University of Maryland * * * * * A prominent national celiac leader added her own distressing story to the discussion, which I'll repeat in part here. She wrote, "My first pregnancy was difficult, compounded by high blood pressure, spotting in first trimester, flu in first trimester. Twins were delivered prematurely; the boy had hyaline membrane disease and lived less than 24 hours. The girl had a meningocele, was only about 1 lb. 3 oz., but she was bright-eyed. This was before anyone put the term spina bifida on these babies. She lived for 3 months in a special care nursery -- wonderful care....she died from heart failure, a blessing but very difficult. We had 'genetic counseling' to see if there was a reason for the multiple birth defects, including a bone disorder too, heart failure, etc. No reasons were forthcoming." In later pregnancies she was monitored carefully and took iron and prenatal vitamins and had two healthy children in the next six years. Some 10 years after the twins were born she was diagnosed with CD. She now believes it was a combination of untreated CD and the flu which led to the birth defects in her first pregnancy. References ---------- (1) Dr. Ivor Hill, pediatric gastroenterologist at the University of Maryland School of Medicine, Baltimore, Maryland (2) "Seroconversion of reticulin autoantibodies predicts coeliac disease in insulin dependent diabetes mellitus", Mdki M, Hupponen T; Holm K, Hallstrom O, _Gut_ 1995; Feb 3692) pgs. 239-42 (3) "Blue Cheese Grows in Popularity", _Orlando Sentinel_, May 16, 1995, pg. H-8

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Recipe Page ----6------- ********************************************************************** Chiliquiles Suizas 1-1/2 lb. shredded cooked beef 1/8 tsp. cumin or ground beef 1 pint lowfat sour cream 2 onions, sliced or chopped 1 14.5 oz can diced tomatoes 2 or 3 cloves garlic 6 to 8 old corn tortillas, sliced salt and pepper or torn into 2-inch pieces 1/4 tsp. oregano 1 lb. co-jack cheese, shredded If using ground beef, brown it with onions, crushed garlic, and spices. If using shredded cooked beef, sauti the onions and garlic until soft, then stir in the meat and spices. In a 9" x 13" (or 8" x 12") casserole dish that has been sprayed with GF cooking spray, layer 1/2 each of the meat mixture, sour cream (drop spoonfuls on), tomatoes, tortilla pieces, and cheese. Repeat layers, making sure the top layer of cheese completely covers the tortilla pieces. Cover and bake at 350 degrees F for 30-40 minutes, removing the cover for the last 10 minutes. This recipe originally came from grape grower Frank Alviso on the Internet, and has been modified by Vicki Lyles to somewhat lower the fat content. Vicki writes, "Apologies to Dorothy Vaughan (our dietitian advisor) for the cholesterol level, but this is yummy! The original recipe called for 1/4 tsp. cumin and 1/2 tsp. ground coriander seed, if you want a spicier version." ********************************************************************** Zucchini Bread 3 eggs, lightly beaten 1/2 cup potato starch 1/2 cup oil 1/4 tsp. baking powder 1/2 cup applesauce 2 tsp. baking soda 2 cups grated, drained zucchini 1 tsp. xanthan gum 2 tsp. vanilla 1 tsp. salt 1 cup soy flour 1 Tbsp. cinnamon 1/2 cup white rice flour Beat eggs lightly in a large bowl. Add oil, sugar, zucchini, and vanilla. Mix well. Sift together the dry ingredients, and add them to the egg mixture. At this point you may fold in 1 cup of raisins and chopped walnuts if you wish. Bake in 3 small pans at 375 degrees F for 45 minutes. This recipe came from _Cooking Gluten Free from MGIG_, pg. 90. ********************************************************************** Buttermilk Banana Cake Cake Creamy Nut Filling 3/4 cup shortening 1/2 cup sugar 1-1/2 cups sugar 2 Tbsp. GF flour mix** 3 eggs 1/2 cup cream 1 cup mashed bananas 2 Tbsp. butter 1/2 tsp. salt 1/2 cup chopped pecans 2 cups GF flour mix** 1/4 tsp. salt 1-1/2 tsp. baking powder 1 tsp. vanilla 1 tsp baking soda 1 tsp xanthan gum Frosting 1/2 cup buttermilk 1 tsp. vanilla 1/2 cup butter, softened 1/2 cup chopped pecans 1/2 tsp. vanilla extract 1 cup flaked coconut (optional) 1/2 tsp. coconut extract 3 Tbsp. milk or cream 2 cups sifted confectioner's sugar Cake: Cream together shortening and sugar. Add eggs and bananas. Beat for 2 minutes. Add dry ingredients, buttermilk, and vanilla. Beat for 2 minutes. Stir in nuts. Place in 2 greased and (GF) floured 9-inch round pans. Optionally sprinkle 1/2 cup coconut on each layer. Bake at 375 degrees F for 25-30 minutes. Cool. Place a layer upside down on a cake plate. Spread the filling (see below) on it. Put the other layer on top. Frost (see below). Filling: Place sugar, flour mix, cream, and butter in a heavy saucepan. Cook until thick. Add pecans, salt, and vanilla. Cool. Frosting: Cream together butter, extracts, and milk/cream until fluffy. Gradually add the confectioner's sugar. This recipe originally came from Sally Sibthorpe of Rochester Hills, Michigan. Sally won first prize with it in the Softasilk Championship Cake contest. It was adapted to be gluten-free by Vicki Lyles. ********************************************************************** ** GF flour mix: 6 parts white rice flour 2 parts potato starch (NOT the same as potato flour) 1 part tapioca starch (also called tapioca flour) ********************************************************************** Tri-County Celiac Sprue Support Group Officials: ------------------------------------------------ Physician Advisor: Thomas Alexander, M.D. Dietitian Advisor: Dorothy Vaughan, R.D. President: Diane Morof Vice President: Mary Guerriero Past President: Kathy Davis Treasurer: Kathy Wagerson Secretary: Denise Parsons Newsletter Editor: Jim Lyles (200-2214@mcimail.com) Contributing Editor: Judy Hafner (gpyp07a@prodigy.com) Disclaimer: ----------- All recommendations, information, dietary suggestions, menus, shopping guide suggestions, medical updates, miscellaneous articles, and recipes in this newsletter are intended for the benefit of our members, readers, and the general public. No liability is assumed by the Tri-County Celiac Sprue Support Group or any of its members. Information in the Sprue-nik Press has not been submitted for approval to the CSA/USA medical board; however it has been approved by our physician and dietitian advisors. Individuals should consult with their physicians and dietitians before following any medical or dietary recommendations in the Sprue-nik Press. Original material used in the Sprue-nik Press is placed in the public domain for the benefit of all celiacs. The information is not copyrighted to facilitate the easy exchange of celiac information. Feel free to reproduce any portion of this newsletter, unless it specifically states otherwise. All we ask is that you indicate where the information came from. The Sprue-nik Press is published by the Tri-County Celiac Sprue Support Group (TCCSSG), a local chapter of CSA/USA located in southeast Michigan. Members receive this newsletter, a shopping guide, and a new member packet full of articles and useful information. Mail-in subscriptions are welcome. For subscription information, send a note to Jim Lyles, at (200-2214@mcimail.com).
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